A recently completed International Childhood Cancer Outcome Project has resulted in the creation of 24 physical, psychosocial, and neurocognitive outcomes for childhood cancers. According to a joint international consensus statement created for measuring quality of survival among patients with childhood cancer, "most children and adolescents receiving modern cancer treatment survive at least 5 years beyond diagnosis...despite these promising results, survival rates remain poor for specific childhood, adolescent, and young adult cancer types." The study authors also caution that patient and provider reports, together with frequent communication of results "are crucial facilitators for the adoption of these core sets in clinical practice and the subsequent initiation of quality improvement efforts."
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Study mentioned: van Kalsbeek RJ, Hudson MM, Mulder RL, … & the International Childhood Cancer Outcome Project participants. A joint international consensus statement for measuring quality of survival for patients with childhood cancer. Nature Medicine 2023;29:1340-1348.
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