New survey highlights the role of clinical practice guidelines to improve care for patients with rare cancers

 Results from a recent ESMO (European Society for Medical Oncology) and EURACAN (European Reference Network to Cancers) had led to a "call for policy action to standardize care pathways for rare cancers after analysis links guidance adherence to patient survival").  According to the survey, conducted between September - October 2025, patients with rare malignancies equate to 650,000 new cases per year, representing 24% if all cancer diagnoses across Europe.  

ESMO and EURACAN thus propose the following actions: 

• Centralize rare cancer surgeries in accredited centres  
• Enforce mandatory multidisciplinary decision-making and time-critical standards throughout patient diagnosis, treatment, and follow-up
• Track adherence to established Clinical Practice Guidelines via national dashboards

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